Writers

Abdul Rohman

Duy Dang‑Pham

Dyah Pitaloka

Erlina Erlina

Ade Prastyani

Abstract

The transmission of informational privacy has become a fertile ground for debate among competing actors affected by the proliferation of information communication technologies. Contexts are among the factors that shape the flow of informational privacy. The existing discussion however has been mainly dominated by perspectives from the Global North and the able-bodied. In response, based on interview data collected from people with disabilities (PwD) living in Vietnam, this study offers the continuum of context in informational privacy transmissions as a concept to illuminate the types, the levels, and the interest of the transmission and the capability of PwD to manage the flow of their informational privacy. The concept has the potential to enrich the existing discussion by providing more nuance and dynamic of informational privacy transmissions situated in the Global South and among groups who have been historically marginalized read more

Authors

Abdul Rohman

Dyah Pitaloka

Erlina Erlina

Duy Dang

Ade Prastyani

Abstract

The inconsistent implementation of disability rights in crisis responses such as the recent COVID-19 pandemic has illuminated the double difficulty that persons with disabilities (PwD) must face. Ableism remains the basis for pandemic responses, leading to a range of irrationalities in collecting and using disability data during critical times. This commentary identifies situational and contextual rationalities in disability data collection and use in Global South. Through vignettes from Indonesia and Vietnam, this commentary illuminates the socio-technical and cultural infrastructure that perpetuates the obscurity of disability rights in the pandemic responses in, respectively, the largest democratic and socialist-communist countries in Southeast Asia. In addition to better listening to the voice of PwD, stronger engagement of organizations of PwD in policy making and programming is advocated for enabling more equitable pandemic preparedness, response, and recovery plans to manifest in future.

Full paper can be accessed here

Center for Bioethics and Medical Humanities (CBMH) FK-KMK UGM akan meyelenggarakan HELP Course 3rd Series Batch 6 dengan tema “Health/Medical Research“

Topik yang dibahas antara lain:
1. Pengantar Etika Penelitian
2. Prinsip Dasar Etika Biomedis
3. Informed Consent dalam Penelitian
4. Tantangan Etis dalam Penelitian Kesehatan
5. Penerapan Praktis Etika Penelitian
6. dan lain-lain

Kegiatan ini akan dilaksanakan secara luring pada:
Tanggal: 23 – 25 Agustus 2023
Lokasi: The Atrium Hotel and Resort Yogyakarta read more

The Center for Bioethics and Medical Humanities (CBMH FK-KMK UGM) again held the Raboan Discussion Forum on Wednesday (26/07). The weekly forum raised the topic Bioethical Problems in Child Marriage. On this occasion, the speaker was Dr. Pinky Saptandari, Dra., M.A. Meanwhile, the moderator of the discussion was dr. Tiea Khatija.

The problem of child marriage is an issue of violation of the rights of children and women, both from a legal, political, health, and social perspective. This issue involves many scientific disciplines, such as law, medicine, psychology, anthropology, and social affairs. Child marriage contributes to stunting, maternal mortality, and educational problems. Even though there is a legal umbrella, such as laws and international conventions, marriage dispensation is still easy to obtain. Culture, tradition, and religious interpretations also influence this issue. read more

The Center for Medical Bioethics and Humanities (CBMH FK-KMK UGM) held the Raboan Discussion Forum last Wednesday (12/7). The topic discussed in the forum was “Knowledge Level of Residents on Bioethical Principles.” The speaker for the forum was dr. Narumi Hayakawa while the moderator was Noviyanti Fahdilla, S.Tr.Keb, MPH.

Research conducted by Narumi shows that the level of knowledge of bioethics among the Indonesian population still needs to be improved. The study illustrates that most of the residents have a moderate level of knowledge of bioethics, indicating a challenge in dealing with ethical issues in medical practice. read more

Wednesday (21/6), the Center for Medical Bioethics and Humanities held the Raboan Discussion Forum. The topic that we raised was Patient Preference VS Family Preference in Palliative Care. The speaker for this discussion was Dr. Christantie Effendy, S.Kp., M.Kes. and moderated by dr. Galuh Dyah Fatmala.

The family in Indonesia is consists of extended family, so making decisions cannot be based on personal preferences. Elderly people in Indonesia are often not the important to have the opportunity to express their opinions, as they are perceived as lacking competence in decision-making. read more

On Wednesday (7/6), the Center for Medical Bioethics and Humanities held the Raboan Discussion Forum. The topic discussed was the Ethical Aspects in RUU. The speaker for this discussion was Dr. dr. Carolina K, SpB., SH., MH and it was moderated by dr. Gregorius Yoga Panji Asmara, S.H., M.H., CLA.

The medical/dental profession has ethical, disciplinary, and legal responsibilities. Bioethical principles, such as beneficence, non-maleficence, autonomy, and justice. Violations of discipline or the law undoubtedly contravene the code of ethics. The Omnibus Law (OBL) was made with good intentions, aims to overcome the hyper-regulation. Ethics in the RUUK OBL explains professional organizations, legal protection, Health Workers of Foreign Nationals (TKWNA), and health funding. read more

Writers

Agnes Bhakti Pratiwi

Hermawati Setiyaningsih

Maarten Olivier Kok

Trynke Hoekstra

Ali Ghufron Mukti

Elizabeth Pisani

Abstract

Objectives

To analyse the relationship between health need, insurance coverage, health service availability, service use, insurance claims and out-of-pocket spending on health across Indonesia.

Design

Secondary analysis of nationally representative quantitative data. We merged four national data sets: the National Socioeconomic Survey 2018, National Census of Villages 2018, Population Health Development Index 2018 and National Insurance Records to end 2017. Descriptive analysis and linear regression were performed. read more

Writers

Agnes Bhakti Pratiwi

Retna Siwi Padmawati

Dick L. Willems

Background:

The importance and attention to patient privacy in recent decades have been directed mostly toward medical data protection in electronic means. Hence, other aspects of patients’ privacy were overlooked, particularly in the primary health care (PHC) level. In the attempt of many countries, including Indonesia, to strive toward universal healthcare provision, a strong and accessible PHC is essential. This situation may create a tension in privacy provision where patients who need to disclose secrets may opt for other facilities, such as hospitals. This study aimed to describe and discuss patients’ and doctors’ perspectives and experiences about privacy in PHC in Indonesia, particularly since the universal coverage started. read more

Writers

Agnes Bhakti Pratiwi

Retna Siwi Padmawati

Joko Mulyanto

Dick L. Willems

Abstract

Background

Accessible and high-quality primary health care (PHC) is fundamental to countries moving towards universal health coverage. In order to improve the quality of patient-centered care provided in PHC, a comprehensive understanding of patients’ values is crucial to address any gaps in the health care system. This systematic review aimed to identify patients’ values relevant to PHC.

Methods

We searched primary qualitative and quantitative studies about patients’ values related to primary care in PubMed and EMBASE (Ovid) from 2009 to 2020. The studies’ quality was assessed using Joanna Briggs Institute (JBI) Critical Appraisal Checklist for both quantitative and qualitative studies and Consolidated Criteria for Reporting Qualitative Studies (COREQ) for qualitative studies. A thematic approach was used in the data synthesis. read more